A Degrading disease is normally unwelcome and many people cannot come into terms with having to grapple with one. Children who go through such experiences end up being neglected and mistreated. A condition like cerebral palsy leaves the child without proper coordination of muscles and movement becomes a nightmare. If not checked, even death is a possible result. To assist these young ones, cerebral palsy support groups for parents should be encouraged.
In order to meet others with the same need and communally explore ways of getting help, people should not overlook the need for this kind of a social circus. Sometimes you feel you are alone until you meet other people, some who are even worse than you. There are health specialists and researchers who would like to work with mothers and give them basic skills that can help. An example is massaging which has been proven by research to reduce anxiety.
With determination, starting is not hard. If you are a parent with a child suffering from this condition, you are bound to meet others when you go to the hospital. What about sharing with them the need to come up with an organization? You never know, you might be surprised to realize this is what most of them actually needed.
Another way is to join a group that has already been formed. However, it would be better if it comprised of parents from the same neighborhood. This way, regular meetings will be possible to chart the way forward. There are many who suffer in silence and for fear of shame, they keep the children indoors with no medical attention at all. Others also lack the funds to meet the huge financial requirements of treating such a disease.
Once a group has been set, you can start by knowing each other and sharing challenges. With an idea of what the pertinent issues are, an action plan can be made to tackle them. One common setback as already stated is meeting the financial demands of treatment. As a support group, it will be more than possible to solicit funds from the community.
There are many ways of seeking donations once the group is registered. You can use the local churches and even mosques. Send representatives there to explain to them about your activities and your need for assistance. The government also can chip in through the budgetary allocations to health. In the wider spectrum, setting up a website explaining about the union and inviting new members and asking for donations will prove to be greatly rewarding.
A good organization attracts membership from all divides. A community of this kind is therefore not an exception. Apart from the affected parents, lawyers, doctors and religious leaders also need to be invited to join. An ideal community is a self sufficient one.
Seminars, parties and similar events work well in creating awareness. They also go a long way in informing the masses that something great is in the offing. The platforms created therein become sufficient for agitating for the rights of these young ones whose futures are exceptionally bright.
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Author: Anita OrtegaThis author has published 11 articles so far. More info about the author is coming soon.